Practical implications of a diagnosis

Being diagnosed with a potentially life-threatening illness will generally leave you in a state of shock and disbelief. You will probably feel like your life has been completely turned upside down. At this very difficult time there are a number of practical and financial considerations that you and your family members will be faced with.

Remember that you are not alone. The Leukaemia Foundation has highly-trained Support Services staff who can help you explore these issues and assist you with helpful information and support.

What are your treatment options?

Beginning treatment can be a confronting and confusing time and you may feel that you are being bombarded with unfamiliar medical terms and information. Your treatment options will vary depending on your particular disease, whether it needs treatment immediately or whether there is time to wait, and other factors which will be explained to you by your specialist. Often your specialist will outline a protocol for treatment which will extend over a period of time and then be reviewed at the end of that period. Depending on blood tests and other kinds of tests, the next phase of the treatment protocol will then commence. Some diagnoses require treatment that will extend over a long period of time.

Do you have to travel to another city for treatment?

Patients requiring specialist treatment who don’t live in Brisbane or Townsville can apply for financial assistance with accommodation and transport through the Queensland Patient Travel Subsidy Scheme (PTSS), or for Northern NSW patients the Isolated Patients Travel and Accommodation Assistance Scheme (IPTAAS). These government schemes provide financial support for accommodation and travel for patients who are required to travel outside their local area to receive specialist treatment. For further information regarding this support you should contact the Patient Travel Clerk at your local hospital.

Where possible, the Leukaemia Foundation provides free accommodation for patients and their family members who come to Brisbane or Townsville for specialist treatment. For more information on accommodation, contact us on 07 3055 8200 or email us at qldsupport@leukaemiaqld.org.au.

How will your family be affected?

The ripple effect of a blood cancer diagnosis can be enormous for your whole family. Adapting to change and loss is hard for most of us, and not only do we need to consider the loss of the individual’s health but also the many other losses that occur as a flow-on from diagnosis. Some of the losses patients and their loved ones commonly face include loss of life as we knew it, loss of home, loss of income, loss of lifestyle as we knew it, loss of friendships, loss of routine, loss of familiar surroundings and loss of social networks for support. While many families discover an inner strength and resilience, feelings of vulnerability, fear, sadness and resentment are also common. Our Support Services staff are available to nurture and guide you through these trying times – contact us on 07 3055 8200 or email us at qldsupport@leukaemiaqld.org.au.

Are you able to continue working?

Some patients with a blood cancer cannot participate in full-time work commitments due to a range of side effects including fatigue, a compromised immune system and a general feeling of being unwell. Patients need to review their capabilities and seek appropriate support and clarity regarding their working roles. Depending upon your work history and the type of work you do, you will need to assess whether or not you are physically able to continue with that type of work, and what available sick leave, long service leave and other leave entitlements are available to you. Then, once you are able to determine what entitlements are available, you can make the appropriate application to Centrelink when you are no longer being paid by your employer or from other sources.

Read another section

» Seeking help
» Advance Care Planning
» Managing your finances
» Accessing superannuation
» Legal matters
» Future planning
» Useful contacts

Download this information

» Download the ‘Getting my life in order’ booklet
» Download the ‘Getting my affairs in order’ factsheet

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