Booklets and fact sheets

Our booklets are intended to provide general information about the diseases and their associated diagnosis, treatment, side effects, and management.

In many cases the treatment of individual patients will differ from that described in the literature. At all times patients should rely on the advice of their specialist who is the only person with full information about their diagnosis and medical history.

You can also find more information about different cancers and conditions in our comprehensive blood cancer information section. Video resources are also available on our YouTube channel.

Acute leukaemia
Chronic leukaemia
Lymphoma
Myeloma
MPN & MDS
Amyloidosis
Transplants
General blood cancer resources
Children’s resources

 

Acute leukaemia

Understanding acute lymphoblastic leukaemia in adults
This booklet is designed to help patients, carers and families understand more about acute lymphoblastic leukaemia (ALL), a type of cancer that affects the blood and bone marrow. This booklet also provides details on the support services available to patients and families through the Leukaemia Foundation. Revised and reprinted June 2015.

Understanding acute lymphoblastic leukaemia in children

Understanding acute myeloid leukaemia
This booklet is designed to help patients, carers and families understand more about acute myeloid leukaemia (AML).

Acute promyelocytic leukaemia (APML) fact sheet

Chronic leukaemia

Understanding chronic lymphocytic leukaemia (CLL)
This booklet is designed to help patients, carers and families understand more about chronic lymphocytic leukaemia (CLL), a slow-growing leukaemia that affects developing lymphocytes, specialised white blood cells that help protect the body against disease and infection. Major revision and reprint June 2017.

Understanding chronic myeloid leukaemia (CML)
This booklet is designed to help patients, carers and families understand more about chronic myeloid leukaemia (CML), an initially slow-growing leukaemia where the bone marrow produces too many white blood cells called granulocytes. Major revision and reprint July 2017.

Fact sheet – CMML

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Lymphoma

Understanding Hodgkin lymphoma (also known as Hodgkin’s disease)
This booklet has been written for people diagnosed with Hodgkin Lymphoma and their families and friends. It provides information about the diagnosis and treatment for this type of Lymphoma which occurs most commonly in younger people (15-30 years). Reprinted September 2014.

Understanding non-Hodgkin lymphoma
This booklet is designed to help patients, carers and families understand more about non-Hodgkin lymphoma (or B-cell and T-cell lymphoma). Lymphoma is a general name given to cancers that arise in the lymphatic system, part of the body’s immune system. There are many different types of B and T-cell lymphoma, many of which affect the body in different ways and respond differently to different types of treatments. Major revision and reprint June 2017.

Fact sheet – ‘Watch and wait’  management of indolent non-Hodgkin lymphomas

Fact sheet – Adult T-cell Lymphoma

Fact sheet – Anaplastic Large Cell Lymphoma

Fact sheet – Burkitt Lymphoma

Fact sheet – CLL-SLL Lymphoma

Fact sheet – Cutaneous T-cell Lymphoma

Fact sheet – Diffuse Large B-Cell Lymphoma

Fact sheet – Follicular Lymphoma

Fact sheet – Lymphoblastic Lymphoma

Fact sheet – MALT Lymphoma

Fact sheet – Mantle Cell Lymphoma

Fact sheet – Nodal Marginal Zone Lymphoma

Fact sheet – Peripheral T-cell Lymphoma

Fact sheet – Primary CNS Lymphoma

Fact sheet – Splenic Marginal Zone Lymphoma

Fact sheet – Waldenstrom’s Macroglobulinaemia

Fact sheet - Understanding ‘Watch and Wait’

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Myeloma

Understanding myeloma
Myeloma, also known as multiple myeloma, is a cancer of plasma cells (mature B-lymphocytes) that usually arises in the bone marrow. Major revision and reprint April 2015.

Fact sheet – Monoclonal Gammopathy of Unknown Significance (MGUS)

Fact sheet – Asymptomatic myeloma

Fact sheet – Solitary plasmacytoma

Fact sheet – Osteonecrosis of the Jaw (ONJ)

Fact sheet – Peripheral neuropathy

MPN and MDS

Understanding Myelodysplastic Syndromes (MDS)
This booklet is designed to help patients, carers and families understand more about myelodysplastic syndromes (MDS), a group of diseases that affect the production of normal blood cells in the bone marrow. There are several different types of MDS and the disease can vary in its severity and the degree in which normal blood cell production is affected. Major revision and reprint September 2011.

Understanding Myeloproliferative Neoplasms (MPN)
Myeloproliferative neoplasms is the general term given to a relatively rare and serious group of disorders in which an abnormal and unusually stable protein known as amyloid is produced. These protein fibrils progressively deposit and accumulate in organs and tissues of the body, disrupting normal function. Produced and printed December 2010.

Fact sheet – Refractory Anaemia with Excess Blasts

Fact sheet – Refractory Anaemia with Ring Sideroblasts

Fact sheet – Refractory Cytopenia with Multilineage Dysplasia

Fact sheet – Refractory Cytopenia with Unilineage Dysplasia

Fact sheet – MDS with Deletion 5q

Fact sheet – Unclassified MDS

Fact sheet – ‘Watch and Wait’ with MDS

Amyloidosis

Understanding amyloidosis – a guide for patients and families
This booklet has been written to help you and your family to understand more about amyloidosis. Amyloidosis is the general term given to a relatively rare and serious group of disorders in which an abnormal protein known as amyloid is produced. Major revision and reprint November 2014.

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Transplants

Fact Sheet – Stem Cell Transplants

Understanding allogeneic transplants
This booklet is designed to help patients, carers and families understand more about allogeneic bone marrow and peripheral blood stem cell transplants. Stem cell transplants are used for a range of diseases including: acute and chronic leukaemia, lymphoma, myeloma, some solid tumours, aplastic anaemia and some immune system disorders (for example scleroderma). There are two main types of stem cell transplants – autologous and allogeneic. This booklet describes allogeneic transplants, where the stem cells are donated by another person whose tissue type is compatible with the patient’s. The donor may be related or unrelated to the patient. Major revision and reprint April 2012.

Understanding autologous transplants
This booklet is designed to help patients, carers and families understand more about autologous bone marrow and peripheral blood stem cell transplants. Stem cell transplants are used to treat a range of diseases including: acute and chronic leukaemia, lymphoma, myeloma, some solid tumours, aplastic anaemia and some immune system disorders (for example scleroderma). There are two main types of stem cell transplants – autologous and allogeneic. This booklet describes autologous transplants where the patient’s own blood stem cells are collected in advance and returned to them after they receive high-dose chemotherapy to treat their disease. Minor revision and reprint June 2017.

General blood cancer resources

Accessing non-PBS Funded Blood Cancer Drugs in Australia
A discussion tool for you and your specialist. This booklet was written to help you, and your family, navigate the complex system for accessing new blood cancer drugs in Australia, particularly ones that have not been funded on the Pharmaceutical Benefits Scheme (PBS).

Eating well
Eating well is especially important if you have leukaemia, lymphoma, myeloma or a related blood disorder. These diseases and its treatments place extra demands on you both physically and emotionally and it is important that the food you eat provides you with the energy and nutrients necessary to help meet these demands. This booklet provides practical information and advice on nutrition for patients, families and carers before, during and after treatment. Major revision and reprint January 2015.

Fact sheet – Blood cancer and the Leukaemia Foundation

Fact sheet – the Leukaemia Foundation Trials Enabling Program

Understanding leukaemia, lymphoma, myeloma and related blood disorders
This booklet is designed to provide patients, carers and families with some general information about leukaemia, lymphoma, myeloma and related blood disorders. It describes the possible causes and symptoms of these diseases, how they are diagnosed and the available treatment options. This booklet also provides details on the support services available to patients and families through the Leukaemia Foundation. Revised and reprinted August 2014.

Living with leukaemia, lymphoma, myeloma and related disorders
This booklet is designed to help patients, carers and families understand and cope with the complex practical and emotional issues that come with living with lymphoma. It addresses topics such as the impact of diagnosis – how to tell others and dealing with the increased stress on families and relationships; coping with treatment; providing support; looking after yourself; survivorship issues and grief. It also provides detail on the support services available to patients and families through the Leukaemia Foundation. Revised and reprinted January 2011.

My Haematology Diary

Getting my life in order
The information in this booklet is designed to help you, your family and friends cope with the complex practical and financial issues that come from being diagnosed with a blood cancer.

Fact sheet - Getting your affairs in order
This simple fact sheet is designed as an accompaniment to Getting my life in order, and contains a brief overview of how you can ensure your personal, financial and legal affairs are up to date.

Fact sheet – Palliative Care
This fact sheet gives an overview of the various types of palliative care available, and how you can find out more information.

Fact sheet – Advance Care Planning
This is an important process where individuals discuss their wishes for end of life healthcare with those close to them and/or their healthcare team, in case they become too unwell to make decisions or speak for themselves. Updated January 2016.

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Children’s and young adult resources

Young Adults with a Blood Cancer
This booklet has been developed to help young adult patients, their friends and families understand blood cancers. The booklet provides information on diagnosis and treatment, side effects and the physical, social and psychological impacts. It also discusses longer term effects and life after cancer. Major revision and reprint July 2011.

Joe has leukaemia
Written especially for children aged 4-7 and a worthwhile aid for parents and carers, this book is designed to help make the diagnosis of leukaemia and likely treatment paths easier to understand for young children. The fictional story of Joe, who is diagnosed with leukaemia and goes through treatment, is written in simple language, using terminology and bright imagery that young children can relate to. The book also provides details on the support services available to patients and families through the Leukaemia Foundation. Reproduced and modified 2011.

Tom has lymphoma
Written especially for children aged 4-7 and a worthwhile aid for parents and carers, this book is designed to help make the diagnosis of lymphoma and likely treatment paths easier to understand for young children. The fictional story of Tom, who is diagnosed with lymphoma and goes through treatment, is written in simple language, using terminology and bright imagery that young children can relate to. The book also provides details on the support services available to patients and families through the Leukaemia Foundation. Reproduced and modified 2011.

Jess’ Stem Cell Donation 
This colourful, simple picture book can help children understand the stem cell donation process.

Ben’s Stem Cell Transplant
This picture book simply explains how a stem cell transplant works.

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